Community Discussions
Explore the latest discussions and community conversations related to this domain.
I just saw more gameplay for ILL. What are everyone’s thoughts on this game. I love anything horror so it’s quite intriguing to me. Not sure what the release date is though.
Main Post: I just saw more gameplay for ILL. What are everyone’s thoughts on this game. I love anything horror so it’s quite intriguing to me. Not sure what the release date is though.
Top Comment: All over the place with this. They released the first footage and stated it wasn’t a game and was just a Unreal demo they had put together. Then the next footage came and they said it was a game, and haven’t turned back on that since. The animations look sketchy to me, way too floaty to be actual gameplay. I hope it’s real though because the aesthetic is fucking awesome and terrifying.
How do you have your shit together as a chronically ill person?
Main Post:
I saw a post on r/adulting recently asking what indicates that someone has their shit together, and the top comment listed groomed appearance, clean home and car, showing up on time & doing what you say you’ll do, coming to obligations prepared, decent finances, living within your means, making plans for your future, and exercising regularly/eating healthy.
Holy shit, the majority of that is impossible to maintain consistently with chronic illness. I have a couple chronic illnesses, none of which constitutes a disability by itself, but together they can be pretty disabling (plus all the weird symptoms that don’t fit within any of my existing diagnoses). If nothing is flaring up, I can make most of these happen, but as soon as I get sick, it’s a struggle to make 2 or 3 of these happen simultaneously.
We probably need our own metric for having our shit together, so what would that look like? And what do you do to present to the world as if you had your shit together in a healthy, able-bodied way?
Edit: Here are some of my favorites from the comments.
-asking for help when you need it
-taking your medications consistently
-keeping up with medical appointments
-drinking enough water and eating if your body lets you
-if you have a job, doing what you need to do to avoid getting fired
-hygiene & chores to the best of your ability
-maintaining relationships with loved ones
-caring for pets/kids
-making progress towards goals and/or not losing progress
-not dying
Top Comment: Yeah, the able bodied version of "having your shit together" is, well, more than a little ableist (edit: to expect some of us to live up to). For me, right now, "shit together" means doing what I can to keep my health from getting worse. So, keeping up with medications, treatments, and appointments, making sure I'm eating/drinking/sleeping enough, pacing myself carefully to avoid crashes, taking precautions against injuries and infections, etc. Beyond that, I keep up with basic hygiene in order to feel human, show up for the people I care about when and how I can, do low-impact chores as I can/need to, and try not to beat myself up too much for the many things I simply can't do right now. That's as together as my shit is going to get at the moment, and I try to be okay with that because there's no point in measuring my life against a perfectly healthy person's.
Chronically ill people of Reddit I need your help.
Main Post:
I (F/24yo) have been underweight my entire life, I've recently been diagnosed with Pots/hEDS and have pretty much had no appetite for the last few years, I've been trying to gain weight but I just can't get myself to eat more than a small plate of food or two a day, I'm not able to do too much physically these days to try to work my appetite up either without getting dizzy and feeling incredibly sick after. So I'm wondering if there is anyone else out there that has struggled with the same or similar conditions that has figured out a way to gain and maintain weight? Thank you in advance for any tips and help, it's greatly appreciated ❤️
Top Comment: You need to eat calorie-dense foods and try to get some exercise. Anything would be helpful, even chair exercises and resistance exercises with one to two pound weights. You don't need to buy those as a can of soup weighs about that much.
How do other chronically ill people without any support survive?
Main Post:
I'm a chronically ill person with a worsening condition that I'm still struggling to get a diagnosis for. I have previous diagnoses that I was receiving treatment for but over the last few months I've had new and worsening symptoms that seem to be related to a different illness. I have no support in my life, I have cptsd from major childhood trauma, and no family/friend/partner in my life. Its gotten to a point where I can barely care for myself. I have no one to drive me anywhere, no public transportation where I currently live, noone to help with finding doctors or treatments, noone to even get or prepare food, noone to help if I cannot function. I literally have no idea how to survive past this point, I'm too ill to work, surviving off savings, I'm too ill to find more doctors to help ect. I'm scared, I really am scared that this means I'm just going to die because I cannot survive getting progressively more ill without any support to help me. How have others in this situation survived? I'm sure there's got to be a few others out there in the same boat as me, although I know it's not that common. I'm in the USA, does anyone know of any help groups for people in my circumstance? I'm really genuinely scared of what's going to happen to me.
Top Comment: Id get to a major city with public transportation and start talking to social workers about what resources are available. If thats not an option get ahold of a county/parish social worker or case manager and see what they have.
I'm chronically ill and people need to learn to shut the fuck up
Main Post:
I'm a 27 year old dude, and I have a chronic auto immune disorder. It's honestly pretty manageable most days and only has bad flair ups about twice a year. The problem is, there is a decent amount of maintenance that goes into my auto immune shit being manageable, and I'm fucking tired of people constantly butting in to either give their opinion, or just give me shit advice that I can't do. So many people will tell me about how I need to try this one weird plant extract, or this one weird exercise that totally helped them with their back pain that one time. They'll tell me I wear ugly shoes and need nicer ones. They'll tell me I need to shower more because it would help clean me and cleanse my skin. They all fucking assume I don't know my own fucking body and it pisses me off.
Guess what, most methods for dealing with short term non chronic pain don't work on most chronic and autoimmune issues. I've tried that shit and it doesn't fucking work. And even they proposed something new, I really don't appreciate the usual tone that they know more about my fucking body than I do.
I have to wear special shoes to prevent severe joint pain in my hips and knees. They're not medical or anything, just a standard walking shoe with extra arch support (think Hoka or Saucony's). But I can't wear these fancy ass shoes that people keep insisting I buy. Why would I spend a minimum of 100 extra dollars for a pair of shoes that will make me feel extreme joint pain for days afterward? Why do people listen to me say that, then ask why I'm being so fucking difficult for not wanting to wear anything but my fucking shoes that fucking work?
As for showers, my auto immune shit causes my skin to be very dry. It's usually fine if I put Vaseline on it nightly, and only shower once a week. If I shower more than this the skin on my hands will start to peel and my feet will crack and bleed. Making it so that I can't walk without the assistance of pain killers. And yet, for some fucking reason, people feel the need to tell me that I should shower more, that I need to wash my hair more, That I'm clearly in the wrong, because god forbid that I actually know how to take care of myself.
I'm so fucking tired of this. I feel like I've finally found a routine that works (this isn't all I do or all people bitch about, just the most recent things that set me off) and people keep shitting on it because "That sounds hard, there's a much easier way" fuck them. I 'm so tired of this. I just want to live my life without a bunch of busy bodies telling me how I'm a fucking idiot that doesn't understand his own body
Top Comment:
I first try to remind myself that people are generally giving this advice from a place of wanting to believe that if they were chronically ill, they'd just do things about it and not be ill or limited anymore. I think the level of powerlessness to certain things that comes with being chronically ill just breaks people if they really take the time to understand it. So instead, they choose to believe if they were in your position they'd just to x, y, or z about it (which we know is not the case.)
They also fail to realize the cost/benefit analysis we have to do for this stuff. Like maybe some things can be worked around, but what's the benefit and does it outweigh the actual financial or energetic cost? The answer is often no. If the answer was yes, we'd probably already be doing it.
You're really valid in your frustration - no one is more an expert on you and your needs than you, and I wish people would just fucking quit. Setting boundaries helps sometimes, but there are certain people who still do it regardless.
Is ILL a SCAM?
Main Post: Is ILL a SCAM?
Top Comment: Haven’t watched the video. But yes. I followed the main guy for a few years, years ago. And I stopped following as he just posted the same footage and kept asking for people to pay more and more. Got a weird vibe. Like 5 years later and it’s the same shit and still no game.m Edit: I should add - I don’t think it’s a scam as in theyre intentionally taking money without the expectation of finishing. I do think that they’re woefully out of the depth and trying to make a triple a quality game with far fewer people than you would need for that game. So if it ever releases, it’ll be - at best - a tech demo. But I think they’re actually trying. It’s just very misguided.